Genetic Counseling Program

Untitled Document

Patient Perceptions of Usefulness of Cancer Genetic Counseling Summary Letters.  By Emily Rettner

Purpose: Assess patients’ perceptions of cancer genetic counseling (CGC) summary letters with respect to: readability, tailoring, letter style and length, perception of value and content, recollection of the genetic counseling session, and understanding of cancer genetics.  Methods: Cross-sectional, self-administered survey designed to assess patients’ perceptions of the usefulness of CGC summary letters. Participants were CGC patients seen in 2007 at the Duke Hereditary Cancer Clinic who received a patient summary letter. Introductory letters and a questionnaire were mailed to participants; and three follow up phone calls were made to increase the response rate. Data collection occurred from February-March 2008. Frequencies of responses to survey items were determined using SPSS version 16.0.  Results: Participants found summary letters to be easy to read, clearly written, of appropriate style and length, and useful in recalling cancer information and in making important decisions about cancer risk management. Letters were used to communicate cancer information and risks to relatives, and do not cause anxiety. We found that summary letters were not used to communicate with physicians.  Conclusions: Cancer genetic counselors at the Duke Hereditary Cancer Clinic should continue to write letters of summary in the current style and format. With respect to contact with physicians, Duke caner genetic counselors should consider sending letters to such physicians and encouraging patients to be more proactive about presenting their letter to their physicians.

Back to Class of 2008 Capstone Projects








  • About Us
  • Admission Requirements
  • Curriculum
  • Clinical Rotations
  • Resources
  • Make a Gift

  • "I chose to attend UNCG because of its shared learning environment and the access to some of the leading institutions in the country. "

  • "UNCG is a great fit for me. The program directors have extensive experience in the world of genetic counseling and provide you with opportunities to work with some of the best medical centers in the country. Our location allows us to have expert guest lecturers, many of whom you also get to work alongside or observe in your clinical rotations in your second year. We also have some really wonderful and unique opportunities as a part of this program: we observe in syndrome specific support groups and clinics, tour genetic laboratories, and are matched with a family with a genetic disease to learn what it is like to live with a genetic condition. Finally, our directors are genuinely invested in each of us, and care about our success and getting to know each of us personally."

  • "The director and assistant director do their best to ensure that our program provides a collaborative learning experience.  Both are active members of the Genetic Counseling community and strive to introduce you to all aspects of this field.  We also have renowned clinical sites and the beautiful state of North Carolina at our disposal.”