Genetic Counseling Program

Untitled Document

Development of a Resource for Genetic Counselors Addressing Guidelines and Ethical Issues in Genetics Research.  By Tomi Toler

The history of human subjects research has been examined extensively in the literature, and much of the conversation, while not specific to genetics, is important for genetic counselors to know. A synthesis of the literature regarding the history of human subjects research, subsequent research reforms, current rules and regulations, the institutional review board, ethical issues specific to genetics research, and the future of genetics research was completed. Four common genetics research issues are discussed, including information databases, stored samples, recruiting of relatives and incidental findings and these were evaluated. Using the information obtained, a resource for genetic counselors was created that summarizes the information in an easy question-and-answer format so that information that would be beneficial to genetic counselors would be easy to find. Recommendations for distribution of the resource, “A Guide to the Basics of Human Subjects Research in Genetics,” are made.

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  • "I chose to attend UNCG because of its shared learning environment and the access to some of the leading institutions in the country. "

  • "UNCG is a great fit for me. The program directors have extensive experience in the world of genetic counseling and provide you with opportunities to work with some of the best medical centers in the country. Our location allows us to have expert guest lecturers, many of whom you also get to work alongside or observe in your clinical rotations in your second year. We also have some really wonderful and unique opportunities as a part of this program: we observe in syndrome specific support groups and clinics, tour genetic laboratories, and are matched with a family with a genetic disease to learn what it is like to live with a genetic condition. Finally, our directors are genuinely invested in each of us, and care about our success and getting to know each of us personally."

  • "The director and assistant director do their best to ensure that our program provides a collaborative learning experience.  Both are active members of the Genetic Counseling community and strive to introduce you to all aspects of this field.  We also have renowned clinical sites and the beautiful state of North Carolina at our disposal.”