Genetic Counseling Program

Untitled Document

Assessment and Resource Development for the NC Neurofibromatosis Support Group  By Amy Furches Blevins

Background:  The purpose of this study was to determine, with the use of a needs assessment survey, the support needs of individuals in North Carolina with neurofibromatosis (NF) and their family members.  Methods:  Participants were recruited through e-mails sent to members of the Children’s Tumor Foundation and NF Inc., and at a NF symposium at Duke University.  Results:  The majority of participants indicated that they would be interested in attending face-to-face meetings of the group.  Participants showed interest in resources such as educational and developmental resources, activities such as NF conferences and symposiums, and small group discussions.  They were also interested receiving advice from other parents and discussion of certain topics such as research updates and coping with NF.  Conclusions:  By analyzing the data that was obtained from the needs assessment, interviewing leaders from CTF and NF Inc. and reviewing the literature on group implementation and maintenance, recommendations were made for development of the NC NF support group.

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  • "I chose to attend UNCG because of its shared learning environment and the access to some of the leading institutions in the country. "



  • "UNCG is a great fit for me. The program directors have extensive experience in the world of genetic counseling and provide you with opportunities to work with some of the best medical centers in the country. Our location allows us to have expert guest lecturers, many of whom you also get to work alongside or observe in your clinical rotations in your second year. We also have some really wonderful and unique opportunities as a part of this program: we observe in syndrome specific support groups and clinics, tour genetic laboratories, and are matched with a family with a genetic disease to learn what it is like to live with a genetic condition. Finally, our directors are genuinely invested in each of us, and care about our success and getting to know each of us personally."




  • "The director and assistant director do their best to ensure that our program provides a collaborative learning experience.  Both are active members of the Genetic Counseling community and strive to introduce you to all aspects of this field.  We also have renowned clinical sites and the beautiful state of North Carolina at our disposal.”