Genetic Counseling Program

Untitled Document

Coping Mechanisms in Fathers of Children with Mucopolysaccharidoses  By Julie D. Jesiolowski

Capstone Project Committee: Nancy Callanan, MS, CGC (UNCG), Chair; Barbara Wedehase, MSW, CGC (National MPS Society); Amy Fisher, MS, CGC (Shire); and Scott Richter, PhD (UNCG), Statistical Consultant

No studies to date have explored coping mechanisms in fathers of children with muccopolysaccharidoses (MPS). The goal of this study was to use the Coping Health Inventory for Parents (CHIP) survey to assess coping styles in these men. Fathers who are members of the National MPS Society were invited to participate in an online survey in November of 2011. A total of eighty-four fathers completed the survey. Using statistical analysis, respondents scored highest on coping subscale II from the CHIP survey. This subscale is defined as maintaining social support, self-esteem, and psychological stability. Descriptive statistics suggests that fathers also rely heavily on their spouse for support, as well as investing themselves in their children. It appears that having a stable family unit is crucial for positive coping. The results also suggest a lack of support from other fathers of children with MPS. Common themes that emerged from the qualitative responses included having an optimistic outlook on life and living in the moment. Overall, fathers appear to be coping by preserving their personal well-being and relying on social support. This study should provide guidance for health care providers, genetic counselors, and support persons working with these families.

Back to Class of 2012 Capstone Projects

 

 

 

 

 

 

 
  • About Us
  • Admission Requirements
  • Curriculum
  • Clinical Rotations
  • Resources
  • Make a Gift


  • "I chose to attend UNCG because of its shared learning environment and the access to some of the leading institutions in the country. "



  • "UNCG is a great fit for me. The program directors have extensive experience in the world of genetic counseling and provide you with opportunities to work with some of the best medical centers in the country. Our location allows us to have expert guest lecturers, many of whom you also get to work alongside or observe in your clinical rotations in your second year. We also have some really wonderful and unique opportunities as a part of this program: we observe in syndrome specific support groups and clinics, tour genetic laboratories, and are matched with a family with a genetic disease to learn what it is like to live with a genetic condition. Finally, our directors are genuinely invested in each of us, and care about our success and getting to know each of us personally."




  • "The director and assistant director do their best to ensure that our program provides a collaborative learning experience.  Both are active members of the Genetic Counseling community and strive to introduce you to all aspects of this field.  We also have renowned clinical sites and the beautiful state of North Carolina at our disposal.”