Genetic Counseling Program

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Giving Good Information: Health Literacy and a 3 MCC Deficiency Educational Brochure.  By Amanda Buglio

This study focused on literature related to the concept of health literacy and used current guidelines to create an easy-to-read educational brochure for families living with 3-MCC deficiency. Methods: Families from the Organic Acidemia Association were identified, consented, and surveyed to learn more about the written information that they received at the time of their child’s diagnosis   Survey participants also were asked to assess the draft brochure’s content, style, layout, format, and readability.  Qualitative and quantitative data were collected and analyzed, and the brochure was revised to reflect survey participants’ comments.  Results:  A majority of survey participants reported not receiving adequate written information at the time of their child’s diagnosis.  When asked about the effectiveness of specific health literacy techniques, the majority of respondents scored these items positively. Conclusion: This study demonstrated the need for information that is written at an appropriate health literacy level and that used health literacy techniques.  The finalized brochure was ready-to-distribute to its target audience upon completion of this project.

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  • "I chose to attend UNCG because of its shared learning environment and the access to some of the leading institutions in the country. "

  • "UNCG is a great fit for me. The program directors have extensive experience in the world of genetic counseling and provide you with opportunities to work with some of the best medical centers in the country. Our location allows us to have expert guest lecturers, many of whom you also get to work alongside or observe in your clinical rotations in your second year. We also have some really wonderful and unique opportunities as a part of this program: we observe in syndrome specific support groups and clinics, tour genetic laboratories, and are matched with a family with a genetic disease to learn what it is like to live with a genetic condition. Finally, our directors are genuinely invested in each of us, and care about our success and getting to know each of us personally."

  • "The director and assistant director do their best to ensure that our program provides a collaborative learning experience.  Both are active members of the Genetic Counseling community and strive to introduce you to all aspects of this field.  We also have renowned clinical sites and the beautiful state of North Carolina at our disposal.”