Giving Good Information: Health Literacy and a 3 MCC Deficiency Educational Brochure. By Amanda Buglio
This study focused on literature related to the concept of health literacy and used current guidelines to create an easy-to-read educational brochure for families living with 3-MCC deficiency. Methods: Families from the Organic Acidemia Association were identified, consented, and surveyed to learn more about the written information that they received at the time of their child’s diagnosis Survey participants also were asked to assess the draft brochure’s content, style, layout, format, and readability. Qualitative and quantitative data were collected and analyzed, and the brochure was revised to reflect survey participants’ comments. Results: A majority of survey participants reported not receiving adequate written information at the time of their child’s diagnosis. When asked about the effectiveness of specific health literacy techniques, the majority of respondents scored these items positively. Conclusion: This study demonstrated the need for information that is written at an appropriate health literacy level and that used health literacy techniques. The finalized brochure was ready-to-distribute to its target audience upon completion of this project.